Tag Archives: Crohn’s

The beginning of the end or the end of the beginning

So this is quite exciting. Persistence pays off it appears.  I have a second possible date for starting the almost mythical Infliximab.  Next Tuesday.  March 13. Some hurdles still to overcome.  Chest x-ray and bloods this morning and then a … Continue reading

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Back to limbo

Not that I can limbo – certainly not at the moment and looking back, I was never that flexible. But here we are mid Feb 2012, in the middle of a course of Ciprofloxacin, hoping to clear up the infection … Continue reading

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“We’re on the road to nowhere”

Funny how often Talking Heads comes to mind when you’re struggling with Crohn’s or Ulcerative Colitis. It can constantly feel like two steps forward, one step back – or worse the other way around. After more than year of daily … Continue reading

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Surgery – my ileostomy choices

Around 2003 I had an ileostomy – at Stirling Royal Infirmary in Scotland. The surgeon confidently told me he was the best in Scotland – I presume they all tell that to all their patients. Having said that, he made … Continue reading

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“I don’t know why but I had to start it somewhere, so it started there.” Pulp

You’ll need some historical context to all this so here are some basics.  I’m 46, a separated father of four and unemployed.  I share my life with Crohn’s disease. I was diagnosed about 20 years ago.  Repeated ulceration and subsequent … Continue reading

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