Author Archives: admin

Catching up

So it was mid-2012 when I last apologised for not updating this blog and I think 18 months between posts should be forgiven.  To be honest I got worn out by constantly feeling sore and unwell. As a quick catch … Continue reading

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Infliximab

It’s been some time since I updated this and for that apologies. I have now had two infusions of Infliximab, two weeks apart and am due my third tomorrow. First things first.  For those of you who haven’t had this … Continue reading

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The beginning of the end or the end of the beginning

So this is quite exciting. Persistence pays off it appears.  I have a second possible date for starting the almost mythical Infliximab.  Next Tuesday.  March 13. Some hurdles still to overcome.  Chest x-ray and bloods this morning and then a … Continue reading

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Sex and a stoma

… or bagging a partner, when you’ve got a bag. So you reach the stage of requiring a colostomy or ileostomy.  The surgery’s a worry, but the future is even more concerning. You’ve battled with the pain of ulceration and … Continue reading

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Depression – or why me?

I’ve read articles about Crohn’s which say that taking Omega 3 as a supplement has no significant specific benefit for IBD sufferers, and that is quite possibly true.  But stay with me – there are less direct excellent effects. But … Continue reading

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Pain vs Sick

Anyone who has or is suffering from Crohn’s or Ulcerative Colitis, knows what both pain and feeling really ill are about.  Often at the same time. But after probably around 20 visits to the emergency wards in a few of … Continue reading

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Back to limbo

Not that I can limbo – certainly not at the moment and looking back, I was never that flexible. But here we are mid Feb 2012, in the middle of a course of Ciprofloxacin, hoping to clear up the infection … Continue reading

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“We’re on the road to nowhere”

Funny how often Talking Heads comes to mind when you’re struggling with Crohn’s or Ulcerative Colitis. It can constantly feel like two steps forward, one step back – or worse the other way around. After more than year of daily … Continue reading

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Surgery – my ileostomy choices

Around 2003 I had an ileostomy – at Stirling Royal Infirmary in Scotland. The surgeon confidently told me he was the best in Scotland – I presume they all tell that to all their patients. Having said that, he made … Continue reading

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“I don’t know why but I had to start it somewhere, so it started there.” Pulp

You’ll need some historical context to all this so here are some basics.  I’m 46, a separated father of four and unemployed.  I share my life with Crohn’s disease. I was diagnosed about 20 years ago.  Repeated ulceration and subsequent … Continue reading

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